Trisomy 13


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Polydactyly - an infant's hand
Polydactyly - an infant's hand
Syndactyly
Syndactyly
Alternative Names

Patau syndrome


Treatment

Because of the severity of congenital defects, life-sustaining procedures are generally not attempted.


Support Groups

Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) -- www.trisomy.org

Living with Trisomy 13 -- www.livingwithtrisomy13.org


Expectations (prognosis)

Extremely short survival time is expected. Rarely, affected persons survive to adulthood.


Complications

Complications begin almost immediately. They include breathing difficulty or lack of breathing (apnea), deafness, vision problems, feeding problems, seizures, heart failure, and others.


Calling your health care provider

Call for an appointment with your health care provider if you have had a child with Trisomy 13, and you plan to have another child.



Review Date: 04/20/2005
Reviewed By: Neal Sondheimer, M.D., PhD., Division of Genetics and Metabolism, Children's Hospital of Philadelphia, Philadelphia, PA. Review provided by VeriMed Healthcare Network.


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