Aicardi syndrome

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Corpus callosum of the brain

There is no standard treatment for Aicardi Syndrome. Treatment involves managing seizures and any other health concerns and programs to help the family and child cope with delays in development.

Aicardi Syndrome Foundation - www.aicardisyndrome.org

National Organization for Rare Disorders (NORD) - www.rarediseases.org

The outlook depends on how severe the symptoms are and what other health conditions are present. Nearly all children with this syndrome have severe learning difficulties and remain completely dependent on others. However, a few have some language abilities and some can walk on their own or with support. The degree or level of vision varies from normal to blind.

Complications vary according to the degree and severity of symptoms.

Call your health care provider if a child has symptoms of Aicardi Syndrome. Seek emergency care if an infant is having spasms or seizure.

Review Date: 09/25/2006
Reviewed By: Daniel Rauch, MD, FAAP, Director, Pediatric Hospitalist Program, Associate Professor of Pediatrics, NYU School of Medicine, New York, NY. Review provided by VeriMed Healthcare Network.